National Hepatitis C Database
Health Protection Surveillance Centre (HPSC).
2005
In scope: To follow the natural and treated history of hepatitis C in people infected through blood and blood products administered in Ireland and to evaluate the impact of various host and virus factors on disease progression.
Consenting patients, and patients who have died, 77% of eligible patients. National data collection, initially carried out annually, subsequently moved to periodic rounds of data collection (once every 2-4 years). Most recent data collection was 2018.
Database of persons infected with hepatitis C through the administration of blood and blood products in Ireland. Objectives of database
- To follow the natural history of infection in this group of people
- To evaluate the impact of various host factors on the progression of the disease
- To evaluate the outcomes of treatment To monitor the uptake of services
- To provide information for the planning and evaluation of health services
- To serve as a resource for future research into hepatitis C.
People infected through blood and blood products in Ireland, consultant hepatologists & gastroenterologists, hospitals & other healthcare providers, general public.
Age; sex; how patient became infected; medical conditions; results of tests; treatments received and treatment outcomes.
Data dictionary not available.
PPSN, IHI, hospital number, names and addresses are not included in the dataset.
Equity stratifiers are not included in the dataset.
Data collected from medical records in Specialist Hepatology units across the country by a HPSC Research Nurse. Consent is required for all living patients.
Data were initially collected annually, but subsequently changed to periodically. The most recent period was for data from 2014 to the end of 2017 (covering a 4-year time period).
Cause of death and medical conditions coded using the World Health Organization (WHO) ICD-10 system. Medications coded using the Anatomical Therapeutic Chemical (ATC) coding system.
Total number in database: 1,322, small numbers of additional patients added at each round of data collection.
Every 1-4 years (latest report delayed due staff being reassigned to COVID-19 work). Reports published on website, see www.hcvdatabase.ie
Web-based database accessible only through the government virtual private network (VPN). Username and password required. Reports published on website, see www.hcvdatabase.ie.
Data requests can be submitted by email to hcvdatabase@hpsc.ie and will be assessed on a case-by-case basis.
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