Irish Prostate Cancer Registry of Ireland (IPCOR)
IPCOR Steering Committee.
UCD is the data controller.
2016
To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate cancer in Ireland. The data is used to generate reports and scientific publications for the public, researchers, clinicians, hospitals and National Cancer Control Programme on prostate cancer care in Ireland.
National. The data was collected from 16 hospitals, 9 public and 7 private hospitals.
The collection began in February 2016 and was completed in January 2020.
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment.
Public, clinicians, researchers, NCCP.
Patient demographics, symptoms at diagnosis, pathology data, PSA data, imaging data, treatments, complications of treatments, procedures, follow-up: recurrence/relapse, further treatments, patient reported outcomes.
The data dictionary is not currently available.
No national level identifiers are included in this collection.
The following equality stratifiers are included:
- Occupation
- Gender
- Marital status
- Deprivation Index.
Research officers employed by IPCOR through the National Cancer Registry Ireland register men in 16 hospitals across Ireland and collect the IPCOR clinical dataset. Eligible men are then contacted by the National Cancer Registry Ireland on behalf of IPCOR and asked to complete quality of life questionnaires before their treatment begins.
Clinical follow up data was collected annually. Up to three years follow up data was collected.
AJCC Prostate Staging 7th Edition
Clavien-Dindo Classification: Surgical Complications
CTCAE Version 4: Medical Complications
Approx 2500.
Ad hoc. A public report was published in November 2018.
Application to IPCOR Steering Committee. Information can be found at www.ipcor.ie
No.